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Should I want more treatment after pancreatic nets with lymph nodes?
Neuroendocrine Tumors (NETs) | Last Active: Jul 31, 2023 | Replies (18)Comment receiving replies
Hi, Did they do a PET scan ? I have stg 4 grade 1 Pnet and I have 23tumors on my liver as well as lymph nodes and one on the pancreas. I am on somastation because it works better with me. Go to the specialist since they will be more on top of it. it was a PET/CT Cu64 Dotatate scan to be exact and I had 3 embolizations which they shrunk them, 3 large tumors, and it helped with the pain which will put me on my knees when it hits me. I have serious pain with mine, some don't. Good luck, stay strong and this to will pass.
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They did a pet scan right before surgery, and did not find any metastasis to my liver. They just did an MRI, and other than finding an arterial perfusion and non-alcohol fatty liver disease (bummer) they didn’t find any lesions or tumors. So, as it stands, I don’t have any tumors. I am wondering if anyone has any experience with chemo or other therapies to go after cancer cells before they are tumors. With the lymph node involvement I had (3 of 10) next to my pancreas, my oncologist is concerned about cancer coming back.