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Hypogammaglobulinemia

Autoimmune Diseases | Last Active: Apr 2 2:16pm | Replies (77)

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@frances007

It has been confirmed after many tests that I do have this disorder, and have been informed that if I get a bad infection I will need immune therapy. I understand the gist of this diagnosis, and have read some academic articles about this disorder. I am curious whether or not this is tied into my bile duct issue, for which I will see the hepatologist later today. Of course I will ask her. My question is whether or not anyone with this diagnosis has had to make any lifestyle changes as a result of the disease.
Thank you

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Replies to "It has been confirmed after many tests that I do have this disorder, and have been..."

Hi Frances, sorry to hear about your new diagnosis. I moved your post to this existing discussion group so you can connect with other members like more easily:
- Hypogammaglobulinemia
https://connect.mayoclinic.org/discussion/hypogammaglobulinemia/

What lifestyle changes have you had to make?