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I definitely am not trying to scare you. Just being precautious!
I was initially misdiagnosed in early October, 2022. It was at Desert Regional in Palm Springs but a month later the gastroenterologist who is the top GI specialist & who I saw in ER before being admitted ordered the MRI which diagnosed me with ductal adenocarcinoma. I had a biopsy Dec 7, 2022 which confirmed my diagnosis. I had the distal pancreatectomy w/splenectomy surgery at Loma Linda University Hospital on Jan 5, 2023 as they were one of the two hospitals within 2 hrs who did the type of surgery I needed. My tumor grew substantially from Dec 7 to Jan 5. On the pre op CT scan they thought it was within the border of my pancreas but when they got in to do the surgery discovered it was growing outside anteriorly. This shows how fast these cancers can grow. They still did the surgery but warned me that microscopic seeds drop off during the surgery and they recommended radiation to the pancreatic bed, which I also had in March, 2023.
MRIs are better than CT scans for seeing a true picture. Like I said, the CT scan from 7/12 showed nothing but the MRI from 7/14 showed the uterine nodule. Both were taken in my pelvis.
Since May 5, 2023 I am going to Eisenhower Lucy Cursi cancer Center which is affiliated with UC San Diego. It’s an excellent cancer center & I have full faith in my oncologist. He is on top of it!
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You're also in Southern California! Good to meet another SoCal person.
My mom's tumor was picked up by a CT scan at one of the small, local hospitals here. We then had a biopsy done at Providence St. Jude's, which confirmed the diagnosis. They took 3 samples. Two of them came back negative, the other came back as well-to-moderately differentiated cancer, so it seemed like my mom's tumor was less active. We then transferred her care over to Cedars-Sinai in Los Angeles, where she did all of her chemotherapy infusions and eventually chemoradiation. I should have full faith in her medical team as they've gotten us this far, but I am scared. I reached out again to Dr. Truty and his team and see what they have to say. Right now, I'm trying to focus on the fact that my mom looks and feels great and the scan did not indicate anything new. I would also assume that at these top hospitals, radiologists would note if gas or inflammation was obstructing their view and suggest a follow-up scan ASAP. I did not see any of those comments, so I just hope all is well.