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Learning Past Cause vs. Quality of Present Life?

Neuropathy | Last Active: Aug 2, 2023 | Replies (52)

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@kath737

Thank you Debbie. Yourself and some of the other members have already helped me understand this weird condition better. I also joined a private fb group. One thing I have learned is to take this very seriously and get a jump on things. I am contacting PT today. I will also be returning to my water aerobics classes tomorrow. I had been a bit lazy for a few weeks. The two topics I will be researching are healthier eating(if there is less of me it will be easier to get around) and vitamin supplements.
What you have accomplished is incredible and very motivating to me. Thank you for sharing and I am so happy for you😊

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Replies to "Thank you Debbie. Yourself and some of the other members have already helped me understand this..."

Kathy - I am always learning. I've been dealing with this for 7 years and I was on my own trying to figure things for over 4 years. I was frustrated that my doctors (outside of PT) offered very little in helping to actually LIVE with PN. I couldn't get advice or recommendations on good pain relief measures (outside of Gabapentin), diet, vitamins, lotions, shoes or foot support, safety or support ideas, exercises, etc. I was so alone and knew absolutely nobody like me to talk to. Then I found this group and am overwhelmed by realizing I am far from alone. Diet... I thought I was doing all of the right things. I am not diabetic, in fact I have had some hypoglycemic events 3 years after PN came, so I have justified eating sugar regularly, including in my daytime beverages. I recently cut back. I accidently wasn't able to drink sweet tea for 3 afternoons for lunch and beyond, and then realized I wasn't feeling the slight stomach discomfort that I had grown accustomed to later in the day. I also had a little more energy, and my legs didn't feel as weak. I know now that folks on here meant it when they said cutting back on sugar is a good idea! I know to be cognizant of how I felt several years ago when I had low sugar episodes, but I know I have been overcompensating my intake and it wasn't helping my PN. This group amazes me and has helped in so many ways. I'm glad I've helped you & I know others will too. Please let us know how your appointment turns out! Debbie