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Learning Past Cause vs. Quality of Present Life?

Neuropathy | Last Active: Aug 2, 2023 | Replies (52)

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@dbeshears1

Welcome @kath737 ! We have the best mentors in this group! @johnbishop never fails to keep folks directed to the most reliable sources of information on various subjects and conversations that are helpful. He & others are also subject matter experts with personal experiences on a lot of various symptoms and recommendations for managing them for optimizing our comfort and quality of life. I have "met" so many folks so willingly sharing their trials and successes (or non-successes). Some help us stay focused on our need to keep our minds focused and positive. I think the biggest learning here is that no two people are exactly alike in this weird PN business, so there are no universal remedies that fit all. I'm glad you have a Neurologist appointment soon. I hope you don't hesitate to get physical therapy if that would help. It helped me get out of a wheelchair 7 years ago - I can't do so many things I was once able to do, but I'm grateful for what I can do. PT helped me regain balance, and keep muscles strong to compensate for the weakness the nervous system creates. I've been taught how to prepare myself if I feel I am falling, and how to get up. It's taught me how to try alternative things or invest in tools that help with what my hands and feet can no longer easily do. I hope you find solutions that fit your needs in dealing with this and find shortcuts to getting ideas from the wealth of experience in this group.

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Replies to "Welcome @kath737 ! We have the best mentors in this group! @johnbishop never fails to keep..."

Thank you Debbie. Yourself and some of the other members have already helped me understand this weird condition better. I also joined a private fb group. One thing I have learned is to take this very seriously and get a jump on things. I am contacting PT today. I will also be returning to my water aerobics classes tomorrow. I had been a bit lazy for a few weeks. The two topics I will be researching are healthier eating(if there is less of me it will be easier to get around) and vitamin supplements.
What you have accomplished is incredible and very motivating to me. Thank you for sharing and I am so happy for you😊

I love Mayo Connect. It keeps me alert and oriented and involved in positive thought patterns. A daily reminder you are not alone and there is a place where you can ask, read, learn and if you want to share concerns.