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← Return to My Autologous Stem Cell Transplant Journey - Mayo, Phoenix
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My Autologous Stem Cell Transplant Journey - Mayo, Phoenix
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jul 28, 2023 | Replies (31)Comment receiving replies
Yes. My husband is being taken care of a Cardiologist and Hematologist even though we live in Virginia. My husband was diagnosed in Mayo Clinic this past May and follow ups with his Cardiologist and Hematologist in Virginia. He has not started with the chemo yet because he is waiting for Mayo to give him an appointment with Hematologist & Cardiologist to run more tests before deciding the correct route to go. Mayo Clinic wants to make sure that my husband has the right Amyloidosis. They want to know if he has the AL or TTR Amyloidosis or if there is something else. It has been a long journey for him. They don’t want to start chemo until they differentiate which of the Amyloids he has. So as of today we are just waiting for Mayo call. In the meantime he is taking Vyndamax. I ask God for strength and a sign which way to go.
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I have a co worker with MM Amyloidosis but his was with his lungs. He received the same treatments I did of Velcade, Darzalex, Revlimid and dexamethasone (forgive spelling). Of course I cannot say what his pattern of treatment was.
My pattern of treatment was, I started out with once a week for 4 weeks of Velcade darzalex and dexamethasone, and 21 days Revlimid. 2nd Stage was 3 once a weeks VDD, then 3rd to 6th stage went to Darzalex injection week 1 once a month with dexamethasone and Velcade once a week for weeks 1,2, 3, and Revlamid started week 1 of each stage for 21 days. I thought I was going to 1 chemo a month in the maintenance stages but found out I have Darzalex, dexamethasone one day a month, and 21 days of Revlamid. I do have BMBiopsy next week so will see what those results are and if the pattern changes.
Naiviv, I am joining your prayer warriors for your husband. I am 66 like jstpeachey, but our God is a God of Miracles if we Believe For It!! Amen.
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That’s your best go to’s right now, God, Mayo and lining up a huge prayer warrior group. In that order, lol, I’m on FB and could not believe the huge support group I gathered on there. Even though I didn’t overload then with updates, they would always let me know they’re there.