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My Autologous Stem Cell Transplant Journey - Mayo, Phoenix
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jul 28, 2023 | Replies (31)Comment receiving replies
Oh my goodness that’s quite the cocktail. I had the Velcade injections twice a week, Zomata once every 3 weeks, took Dexamethasone once a week, and took Revlimid daily for 3 week increments. The Velcade will leave him with strange looking red marks, it’s something that has to be injected very slowly, the slower the do it the less redness. Advise get him some Aquaphor Ointment and rub it in real good and have some type of Benedryl spray on hand cuz it can get really itchy. Bless his hear at 80 we shouldn’t have to be going thru so much, older people and babies, it just ain’t fair. If I could take it all from them I would. Please keep me posted on how he does. I assume your still with Mayo?
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Yes. My husband is being taken care of a Cardiologist and Hematologist even though we live in Virginia. My husband was diagnosed in Mayo Clinic this past May and follow ups with his Cardiologist and Hematologist in Virginia. He has not started with the chemo yet because he is waiting for Mayo to give him an appointment with Hematologist & Cardiologist to run more tests before deciding the correct route to go. Mayo Clinic wants to make sure that my husband has the right Amyloidosis. They want to know if he has the AL or TTR Amyloidosis or if there is something else. It has been a long journey for him. They don’t want to start chemo until they differentiate which of the Amyloids he has. So as of today we are just waiting for Mayo call. In the meantime he is taking Vyndamax. I ask God for strength and a sign which way to go.