Connect
Discussion
Comment receiving replies
Replies to "Thanks for sharing your journey. I know your intention was not to scare me, but man..."
Pancreatic Cancer | Last Active: Jul 27, 2023 | Replies (24)
Comment receiving replies
Thanks for sharing your journey. I know your intention was not to scare me, but man am I scared now! I just sent a message to her oncologist asking if this is something we should worry about. Even though her scan looks good, I haven’t stopped reaching out to other oncologists in the area for a second opinion.
Just curious, when you were first misdiagnosed, were you at a small local hospital? Since we’re at one of the top hospitals in the nation, I would hope they would do their due diligence and suggest an MRI to better visualize things if they weren’t sure…
Replies to "Thanks for sharing your journey. I know your intention was not to scare me, but man..."
Connect
I definitely am not trying to scare you. Just being precautious!
I was initially misdiagnosed in early October, 2022. It was at Desert Regional in Palm Springs but a month later the gastroenterologist who is the top GI specialist & who I saw in ER before being admitted ordered the MRI which diagnosed me with ductal adenocarcinoma. I had a biopsy Dec 7, 2022 which confirmed my diagnosis. I had the distal pancreatectomy w/splenectomy surgery at Loma Linda University Hospital on Jan 5, 2023 as they were one of the two hospitals within 2 hrs who did the type of surgery I needed. My tumor grew substantially from Dec 7 to Jan 5. On the pre op CT scan they thought it was within the border of my pancreas but when they got in to do the surgery discovered it was growing outside anteriorly. This shows how fast these cancers can grow. They still did the surgery but warned me that microscopic seeds drop off during the surgery and they recommended radiation to the pancreatic bed, which I also had in March, 2023.
MRIs are better than CT scans for seeing a true picture. Like I said, the CT scan from 7/12 showed nothing but the MRI from 7/14 showed the uterine nodule. Both were taken in my pelvis.
Since May 5, 2023 I am going to Eisenhower Lucy Cursi cancer Center which is affiliated with UC San Diego. It’s an excellent cancer center & I have full faith in my oncologist. He is on top of it!