Severe SI joint pain and pain stimulators

Posted by eddiestella1 @eddiestella1, Jul 21, 2023

Has anyone had severe SI joint pain from failed surgeries and had success with being in less pain from the Medtronic pain stimulator?
My pain is on a level of torture pain. I need relief. I’m on hydromorphone and it doesn’t even touch my pain. It’s awful.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

I had my L4 & L5 disc fused. Last Oct is when they fused my L4 disc and I guess it’s still not fused all the way yet. But I know my pain is coming from my SI joint. It’s debilitating.
It’s the same pain I had for years but continues to get worse.
It’s too bad CBD doesn’t last long. I take hydromorphone every three hours and it doesn’t even touch my pain. It does help me be able to get up in the mornings. This med is what docs give people after major surgeries for pain relief. So when I had my surgeries last fall I didn’t have much pain relief after my surgeries. They also ripped hardware out of my SI and added new hardware at the same time they fused my L4 disc.

REPLY
@tiredpup1

I had the failed surgeries and decided to take the trial for the implant. I got really good results and have had the permanent one for 3 years now. I have never been sorry. I get about a 95 percent relief with it. My Implant is good for ten years, and it's given me a new lease on life. Mine is a Boston scientific also produced by Medtronic. Mine is located in my back right above my hip. Good luck with the trial.

Jump to this post

I started the process of getting the implant and took all of the testing including the three hour questionnaire and I never heard anything afterwards.

REPLY
@eddiestella1

I agree! Have you tried Capsaicin? I like to put that on and then lay on the heating pad. Even though it says not to do that. It helps burn my pain away. I also like the tens unit. But it’s a pain to have on with it falling off while walking around. The pain is debilitating and I wish they can figure out how to fix it. I’m far in worst pain than I was before my SI was fused. I never should have allowed the doc to fuse me in the first place let along 9 times. Pain and feeling desperate was the driving force.

Jump to this post

You know what they say about doing the same thing over and over and expecting a different result. I have an L5-S1 fusion 6years ago. No help at all. I read somewhere that spinal fusions are one of the biggest cash cows for orthopedic surgeons. If I could, I would never have that surgery done. So, how do they explain it? "Failed back surgery syndrome". Handy excuse.

REPLY
@eddiestella1

I had my L4 & L5 disc fused. Last Oct is when they fused my L4 disc and I guess it’s still not fused all the way yet. But I know my pain is coming from my SI joint. It’s debilitating.
It’s the same pain I had for years but continues to get worse.
It’s too bad CBD doesn’t last long. I take hydromorphone every three hours and it doesn’t even touch my pain. It does help me be able to get up in the mornings. This med is what docs give people after major surgeries for pain relief. So when I had my surgeries last fall I didn’t have much pain relief after my surgeries. They also ripped hardware out of my SI and added new hardware at the same time they fused my L4 disc.

Jump to this post

Your sad story reminds me of the mechanic trying to fix the problem with your car. Except he doesn't know exactly what the problem is so he tries a half dozen fixes, none of which work. Then, on the 7th or 8th try, he stumbled on the right fix. Of course, meanwhile you are getting charged for all the non-productive hours of hit and miss tries. He could have consulted with other mechanics, or searched the web, but pride prevented him from doing so. Too bad, too sad.

REPLY
@heisenberg34

Your sad story reminds me of the mechanic trying to fix the problem with your car. Except he doesn't know exactly what the problem is so he tries a half dozen fixes, none of which work. Then, on the 7th or 8th try, he stumbled on the right fix. Of course, meanwhile you are getting charged for all the non-productive hours of hit and miss tries. He could have consulted with other mechanics, or searched the web, but pride prevented him from doing so. Too bad, too sad.

Jump to this post

It really is sad. I’m worse off now than I was before he initially did surgery on me. It has ruined my life. My quality of life is not the same. I suffer all day and look forward to going to bed at night. It’s the only time I’m not in pain when I sleep. I have no problem sleeping as I’m exhausted being in pain every minute of the day, all day long.

REPLY

I am pretty good when I am lying down or sleeping. Otherwise it's burning feet, lower back pain, painful buttocks when I sit. Apparently, I must be the only person in the history of the world to have these problems. Ha! Keep searching. You have to be your own best advocate. It only takes one doc who has seen your condition before and knows what to do.
God bless and prayers for success.

REPLY
@heisenberg34

I am pretty good when I am lying down or sleeping. Otherwise it's burning feet, lower back pain, painful buttocks when I sit. Apparently, I must be the only person in the history of the world to have these problems. Ha! Keep searching. You have to be your own best advocate. It only takes one doc who has seen your condition before and knows what to do.
God bless and prayers for success.

Jump to this post

Did you ever find the “one doc”? I actually have similar symptoms. No answers yet.

REPLY
@romans8

Did you ever find the “one doc”? I actually have similar symptoms. No answers yet.

Jump to this post

Negative. If I had bee Tom Brady, I would be as good as new by now.

REPLY
@dianeg616

I'm scheduled for an SI injection in about 3 weeks. My pain is centered down by my tailbone and spreads across my lower back and down my leg and causes such a deep ache that I can't sit still and laying down can make it worse. I hope and pray I get some relief from the injection.

Jump to this post

Ditto ! Let me know what works

REPLY
@heisenberg34

I am pretty good when I am lying down or sleeping. Otherwise it's burning feet, lower back pain, painful buttocks when I sit. Apparently, I must be the only person in the history of the world to have these problems. Ha! Keep searching. You have to be your own best advocate. It only takes one doc who has seen your condition before and knows what to do.
God bless and prayers for success.

Jump to this post

Thank you. I am sorry you are in so much pain too. Did you have your SI joint fused too?
Also do you have neuropathy in both feet? I do. They don’t know why I do. They claim it’s not from all the surgeries I had in my SI and back. It started out in one foot but I now have neuropathy in both feet. Had all the test done and I’m in that percentage where they don’t know why I have neuropathy in both feet.
I wish you the best of luck and I hope you start to feel better.

REPLY
Please sign in or register to post a reply.