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MAC nodules

MAC & Bronchiectasis | Last Active: Jul 27, 2023 | Replies (54)

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@frankie160

Hi Irene5 and other Members!

Thanks for your post re Arikayce curing your MAC! I was so encouraged and certainly hope you never have MAC again.

Just wondering when you started Arikayce and how long after were you negative?

I started Arikayce on 7/10/23 and so far with little to no side effects just the voice changes and some extra coughing! I was told by the special Arikayce Pharmacist these side effects could remain for the duration you are on the med. I am also continuing the Big 3 which I have been on for more than 10 months.

Thank you in advance for responding and should there be any other members of this wonderful group who are on Arikayce or have been cured, I would appreciate a response when you can.....

Thanks,
Flo @frankie160

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Replies to "Hi Irene5 and other Members! Thanks for your post re Arikayce curing your MAC! I was..."

I was put on Arikayce in June of 2020 and was on it till February of 2022. I was tested via two bronchoscopies - one in June and another in August of 2022, and both were negative for MAC. I had very few if any side outward side effects from Arikayce. Good luck! Irene5