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Did anyone undergo Car-T therapy for B cell lymphoma?

Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 7, 2023 | Replies (76)
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@peggybyses

Did you have any energy problems. I am so tired I can hardly get out of bed. I’m trying to exercise go to PT twice a week it’s just not coming on for me.

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Replies to "Did you have any energy problems. I am so tired I can hardly get out of..."
annberkowitz | @annberkowitz | Jul 27, 2023

I had no energy for about six weeks. The first month was the worst due to low bp. Had to be wheeled to my appointments.

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Bob, Alumni Mentor | @grandpabob | Jul 28, 2023

Hello @peggybyses, great job attempting to go to PT twice a week. I found it took at least 18 months to get back to some semblance of what was previously normal. (Whatever that is) Given how absolutely terrible I felt prior to having Car T, I do not necessarily account the long recovery time to the Car T, I suspect for me, all the chemo and radiation therapy prior to Car T had a lot to do with that as well.

I found that energy and strength came back slowly, I tried to eat healthy, being patient with my body was the key.

Be patient, your strength and energy should return.

Even if you are currently struggling with PT, are you happy with your day to day progress?

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