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Did anyone undergo Car-T therapy for B cell lymphoma?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Nov 7, 2023 | Replies (76)Comment receiving replies
Hi. I underwent CarT therapy in December 2020 for Mantle Cell Lymphoma which is a B cell non Hodgkin's. I am still in remission and my scans are now once a year. They draw blood 3 times a year and all has been good. My immune system has not completely recovered so I occasionally need an IVIG infusion to boost my system. No big deal. I feel great. I would like to ask if anyone has experienced mouth sores intermittently after CarT?
Replies to "Hi. I underwent CarT therapy in December 2020 for Mantle Cell Lymphoma which is a B..."
@ronkampner, here is a discussion about mouth sores that might be helpful, not specific to CAR-T necessarily.
- Mouth Sores from chemo: When do they go away?
https://connect.mayoclinic.org/discussion/mouth-sores/
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@peggybyses, I think you got a lot of good tips from fellow CAR-T members about how long fatigue might last. In the Cancer: Managing Symptoms support group (https://connect.mayoclinic.org/group/cancer-managing-symptoms/), there are also additional tips about coping with fatigue, for example:
- Fatigue and cancer treatment: How do you cope? https://connect.mayoclinic.org/discussion/fatigue-in-cancer-treatment/
How are you doing today?
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Hello @ronkampner , I am glad to hear you are doing well. Like you, my immune system is extremely low, as a result I am very careful around people who are not feeling well. I have not experienced mouth sores after Car T, interestingly enough I did not have them during my many rounds of chemo, which I am eternally grateful for.
Do you receive more than one IVIG infusion to boost your immune system or is it a series of a few?