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Replies to "Hi, I’m new here and just read this. I was was diagnosed in 2012 had lumpectomy,..."
Breast Cancer | Last Active: Mar 17 7:19pm | Replies (132)
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Hi, I’m new here and just read this. I was was diagnosed in 2012 had lumpectomy, chemo, Herceptin, & radiation then took anastrozole for 9 years. I completed it September of 22 to this day I wake up tired in pain takes 2 hours to use my hands feet are always numb and pain and inflammation throughout my entire body! Brain fog is something I just learned to live with! Just writing this I keep getting confused! I gave up on my oncologist they think I’m crazy or something else is causing this! I know it’s from that medicine! I don’t think I’ll ever be the same! They don’t warn you about any of this!! I’m at the point I think I’d rather get hormones and have a quality of of life rather than quantity of life!! Idk what to do!?!?!?
Replies to "Hi, I’m new here and just read this. I was was diagnosed in 2012 had lumpectomy,..."
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I admire you for giving it all such a good try! I'm with you even though I just had lumpectomy on Tuesday, after stopping my bio-identical hormone creams. After 3 days I was mostly unable to walk due to pain. I have a spinal canal condition that causes 24-7 back pain and it was so much worse, plus my entire body hurt. Could hardly get out of bed. I went back on the hormones at
1/2 dose and after 2 days I felt better. My medical oncologist wants me to go on hormone blocker therapy too. Honestly, I'd rather die than live in so much pain. Sounds extreme, I know, but it's the truth. He isn't going to be happy about this. I don't know what to do except find the balance of what I can live with. Maybe try tapering instead of cold turkey. Would the pain get better after awhile off the hormones? I have spinal osteoporosis from too many epidural steroid injections so AI's are out. I'm post menopausal but I do not want to take tamoxifen. Iwill be having radiation. How do I negotiate with the oncologist? It IS OUR bodies, OUR lives, even though we're feeling like it is now not. Thank you for reading this.. I'm open to any suggestions.