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My Autologous Stem Cell Transplant Journey - Mayo, Phoenix
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jul 28, 2023 | Replies (31)Comment receiving replies
My husband will probably start with chemo depending on the results of the immunoglobulins panels. His 2 biopsies showed no amyloid in the bone marrow but it seems it was found that plasma cells are acting up resulting in an increase in proteins. The hematologist told him he doesn’t have the Myeloma but wants to start him with chemo as if he would have the disease. My husband is 80 yrs old. I confess that I am really scared because he has Right Heart Failure and suffers from the results of his Proton Therapy radiation that he had in 2009. He has been in remission for years until these lonths when the cardiologist in Mayo Jacksonville diagnosed him with Cardiac Amyloidosis. His chemo treatment will consist of 2 injections: Velcade + Darzalex (duratumumab) in addition to Cytoxan+ Dexamethasone + antiviral Acyclovir. A cocktail that I am scared of. Did you get this treatment too? My husband also has been taking Vyndamax for his TTR Amyloidosis. The Hematologist mentioned Heart Biopsy but never Stem cell. Get well soon and stay healthy.
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Oh my goodness that’s quite the cocktail. I had the Velcade injections twice a week, Zomata once every 3 weeks, took Dexamethasone once a week, and took Revlimid daily for 3 week increments. The Velcade will leave him with strange looking red marks, it’s something that has to be injected very slowly, the slower the do it the less redness. Advise get him some Aquaphor Ointment and rub it in real good and have some type of Benedryl spray on hand cuz it can get really itchy. Bless his hear at 80 we shouldn’t have to be going thru so much, older people and babies, it just ain’t fair. If I could take it all from them I would. Please keep me posted on how he does. I assume your still with Mayo?