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Elevated parathyroid hormone (PTH): How is it treated?

Diabetes & Endocrine System | Last Active: Oct 15 5:15pm | Replies (157)
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@ajbroffitt

I have a 14 yr old daughter. 2.5 years ago she was hospitalized for a 5.3 calcium and a 638 PTH she was 12 at the time. We have been working with an endocrinologist for two years but she does not want to take her medication we did get the calcium up to 9.5 and the PTH down to 228 in January 2023. We just did the blood work again today. She has not been taking her medicine calcium 7.7 PTH 386. She was diagnosed with para pseudo hypo parathyroidism 1B I understand this is an unusual diagnosis Mike she need surgery for her parathyroid?

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Replies to "I have a 14 yr old daughter. 2.5 years ago she was hospitalized for a 5.3..."
Teresa, Volunteer Mentor | @hopeful33250 | Jul 26, 2023

Hello @ajbroffitt and welcome to the Diabetes & Endocrine System Support Group on Mayo Connect. I read with a great deal of interest about the problems of your teen daughter. As a mother myself, I can imagine that you must be concerned about this health issue.

Just a few questions: you mentioned that she is not taking her medicine, what kind of medication was suggested? Also, is she seeing a pediatric endocrinologist? Other than her blood work being abnormal, how does she feel? Is she eating, sleeping and does she have energy?

Have you considered a second opinion with a research-oriented medical facility such as a university medical school or a facility like Mayo Clinic. If you are not nearby one of these types of medical facilities, you might contact them for a virtual consultation. Here is information on obtaining an appointment with Mayo Clinic, http://mayocl.in/1mtmR63.

I look forward to hearing from you again with some more information.

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dearley | @dearley | Jul 26, 2023

You have to supplement Vita. D3 in order for calcium to absorb. What are her Vita. D levels? My parathyroid was elevated & my endocrinologist explained that it was because my Vita. D was low, causing me not to absorb my calcium. Hope this helps.

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