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← Return to My Autologous Stem Cell Transplant Journey - Mayo, Phoenix
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My Autologous Stem Cell Transplant Journey - Mayo, Phoenix
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jul 28, 2023 | Replies (31)Comment receiving replies
One tool we found very useful in building our support team was Caring Bridge. Most of those who have shown desire to support my wife follow our Caring Bridge daily.
As caregiver to my wife I can say it is nice to have backup caregivers to provide respite care when needed. Sometimes cancer seems to be harder on the caregivers than on the victims. We all need a break once in a while.
Replies to "One tool we found very useful in building our support team was Caring Bridge. Most of..."
I was super lucky to have a care team of 3 (friends/family) staying with me for the month post-transplant. Because there were 3 of them they were able to keep almost normal remote work schedules and care for me as well. Along with Caring Bridge we had another friend set up and manage Meal Train for them (since I couldn't eat any outside food). It worked really well. Take care of the care givers!
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Absolutely agree, I had back up caregivers but never had to call them in. If hubby needed to get groceries, he would get me in for my appt, then take off and go do what he needed to do and be back in time to wait some more, lol. Each appt takes a minimum of 2 hours. That’s my experience anyway. And there were very few days I couldn’t get up and do for myself.
I wish you and your wife the best, there ain’t nothing easy about any of this, I know