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Learning Past Cause vs. Quality of Present Life?

Neuropathy | Last Active: Aug 2, 2023 | Replies (52)

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@johnbishop

Hello @kath737, I would like to add my welcome to Connect along with Debbie @dbeshears1 and others. I was also happy when I first found Connect and learning I wasn't alone. It is really helpful to read the experiences of other members. The Neuropathy Support Group has many discussions you might find helpful. You can see the list of discussions here - https://connect.mayoclinic.org/group/neuropathy/.

Do you mind sharing a little more about your diagnosis and symptoms that bother you the most?

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Replies to "Hello @kath737, I would like to add my welcome to Connect along with Debbie @dbeshears1 and..."

Thank you John for welcoming me! My journey with neuropathy has been going on for about a year now. I have some other things going on like type two diabetes, but my numbers are low - A1 is 6 so we know that is not causing the neuropathy. I have had an MRI done of my brain and that my brain is fine and I had the awful muscle test done and my muscles are fine. I see the neurologist in August and I’m sure there will be more testing. The left side of my body is more affected and has more numbness. The numbness starts under my arm and then goes down through the entire left side. My feet and left hand are the worst. I have constant pins and needles there. My right foot is also affected but not as much as the left side. My ankles at times feel like there is a metal vice squeezing on them. I also have a weakness in both legs, especially the left one. Some days are better than others as far as walking and on the worst days I need to use my cane because my balance is not great. I find it frustrating, and would really like to know what I’m dealing with. I’m not as concerned about the why of it because it is what it is. I am concerned about where I go from here. Thank you again, John and everyone’s posts that I read. I no longer feel like I’m alone on an island.