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@lizward46

Good morning, Quick recap on my PMR. Diagnosed in May 2023, started on 25 mg. Prednisone, then increased to 30mg. Symptoms (severe joint pain) miraculously went away. Tapering has been slow and I am now down to 10mg with Dr. saying to decrease 1mg per month. I have been on 10 mg for 2 1/2 weeks with no problems until yesterday when I started to feel very stiff all around my thighs. Woke up this AM with same symptoms, no progression to other body parts so far. I assume this is a flare, but is it a mini flare? Will it go away? Will it decrease? Will it increase to my former nightmare of pain? I am calling my rheumatologist today for advice. I would rather wait out the discomfort than increase my prednisone if I knew it was a temporary flare. I guess what I am asking the group is information about a sudden flare. Thank you for any advice or information about flares. Liz Ward

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Replies to "Good morning, Quick recap on my PMR. Diagnosed in May 2023, started on 25 mg. Prednisone,..."

Hi there- Congrats on getting to 10 mg prednisone. But it can be disappointing to have a flare—between the pain and the uncertainty of it, it’s tough.

It sounds like you’re having a similar experience to my father. He also had to go up to 30 mg. For what it’s worth, it seems common when trying to get to 10 mg and below for things to get a little sticky.

To answer your question, it can be hard to know. It could be a “mini flare,” as you say—it might pass in a few days because other things could affect inflammation. If your pain increase is minimal and you’re comfortable waiting it out at least two to three days to see if you get back to baseline, that seems reasonable.

But my PT’s guidelines are that if my pain level goes up by 2-3 points and remains elevated for 2 or more days, it’s probably time to intervene.

Even without that guideline, if you get to be in a lot of pain and much more limited, usually it’s better to do a slight increase in prednisone, and then try again. It’s frustrating, but your body just might not be ready. For my family (father has PMR; I’m a caregiver), we decided it’s not worth giving up the quality of life and risking a potentially larger and more prolonged flare. But a lot of that depends on what you feel comfortable with and what you and your doctor decide. Glad you can check in with your rheumatologist, and hope you feel better soon!