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DiscussionWould like to know people's experience using Fosamax
Osteoporosis & Bone Health | Last Active: 5 days ago | Replies (197)Comment receiving replies
Replies to "I AM BEING ADVISED BY MY ENDOCRINOLOGIST TO START ON PROLIA AS I HAVE HAD FOUR..."
I had a bad reaction to Fosamax. It has many side affects. No 2 people R the same & for a Dr. to state "everyone takes it that has osteoporosis without a reaction" is misleading. I M medication sensitive. My bad reaction was bone locking. Woke up at 4 AM to take my pet out for a walk & could not move. It took over 4 hours for me to be able to unlock my legs & 1 arm. I had a bad reaction to Os-Cal in the 1960's causing pain in my bones. When I stopped taking both of these Meds/Supplements, the symptoms ceased. My PTH (parathyroid) tests fluctuate. I don't see any conversation regarding this test & its importance. Now I am being bullied into taking the Prolia shot by physicians! How much of a kickback do they get for promoting these drugs? I was just told by my primary care physician (PCP) that it will make no difference to be seen by an endocrinologist as she will send me to the Grand Poo-bah expert of Osteoporosis study at the U/R for the Prolia shot. No one is interested in checking me 2 C if I hv a problem w/the parathyroid test. I M 80 yrs of age. I spent my entire career in a swivel chair w/3 phones & 2 bookshelves of heavy manuals I wrote to help me diagnose software & hardware issues. I was constantly rotating at the waist. Now I have problems with my knees, especially the left one & that is where the "osteoporosis" was found. It's a no brainer. I've had this problem for 8 years & this could be the reason why the femur shows bone loss. What is the matter with these doctors. I'm doing their homework & they are blowing me off. "Be your own medical advocate" - Right! & Be ignored. Input anyone? Am I celiac sensitive? Dr. response: "You don't exhibit any signs of it." How would they know? It's a blood test - very simple blood test. The parathyroid test is a scan. I'm moving on from my current PCP to an Internist.
Like you, I did NOT want to take Prolia. I joined a support group for osteoporosis and I went there the night before I was to get my first injection. I said I didn't want to do it and some women started talking to me. They had me speak by phone to a couple of women who both got osteonecrosis of the jaw (which spread from there in one woman). After talking to them, I was resolved not to take Prolia or any other "bone-growing drug." I stopped eating sugar and drinking diet sodas six years ago - that's a step in the right direction. But my osteoporosis got worse still. I started paying attention to every single thing I ate - and I supplemented with boron, magnesium, postassium, the calcium I wasn't getting from food, vitamins D and K2 (mk4, mk7). I stopped using Nexium for acid reflux. I also used a very low dose of estrogen patch 0.025 mg. I am not using it as much as I was using it in the beginning. For what it's worth, I also did collagen peptiddes. My DEXA scan has improved for my back - for the first time EVER. My left forearm is slightly worse (0.02 change). I do a LOT of research and I have worked in the medical field for many years. I know that vitamin K2 (mk4, mk7) has caused some improvement in studies. Boron is a trace mineral that has been shown to improve bone density. You will have a very hard time finding anything good written about boron. It relieves arthritis pain dramatically (in my experience with both RA and OA as well as FMS - I am about 85% relieved of pain). The medical community makes a lot of money off arthritis - and boron is very inexpensive. It's just garbage what they do. Of course, the small amount of estrogen is helping also. I will know more in another couple years and I will report back. I was not able to exercise much during this time as I lost someone very dear to me during the pandemic, and I became ill because of the loss. I was pretty much bedridden for 13 months. I am just starting to feel better, and it will take a while to get up to speed. Exercise may be enough to see a big difference.