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Anyone have a neuroendocrine tumor (NET) in the spine?

Neuroendocrine Tumors (NETs) | Last Active: Oct 23, 2023 | Replies (56)
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@irenag

Hi Andy2020,
Do you remember if at the beginning your pain the the upper back was intermittent or constant? I have s pain at a spot in my upper back, on the right side of the spine, and it comes and goes but when it's here, it stays for a long time. I have a NET in my pancreas and the imaging hasn't indicated (nobody has told me) anything in the spine. I wonder ...
Thank you.

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Replies to "Hi Andy2020, Do you remember if at the beginning your pain the the upper back was..."
Teresa, Volunteer Mentor | @hopeful33250 | Jul 26, 2023

Hello @irenag and welcome to the NET support group on Mayo Connect. I can certainly understand your interest in the posts by @andy2020.

Have you mentioned this pain to your oncologist? Do you regularly have Gallium 69 Dotatate PET scans to check for NETs? Here is some information about this type of scan:
https://connect.mayoclinic.org/discussion/68ga-dotatate-positron-emission-tomography-pet-now-at-mayo-clinic/
I look forward to hearing from you again!

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