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Feeding tube patients: What's your experience?

Esophageal Cancer | Last Active: 1 day ago | Replies (53)

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@jwkelly72

Thank you for your response. I used ISO source (rehab), Vital (hospital)and now Jevity 1.5 at home. My tube is permanent since surgery isn't possible (too stressful on my good side). Won't do radiation, won't do higher levels of chemo because of possible serious common side effects. My feeding tube first popped out mid January after 3 months, I reinserted it myself (caught it before the hole closed and healed. The bladder eventually disintergrated and now duct tape keeps it tight, but I take it out or it still comes out frequently. I'm holding off on surgery replacement due to 3 previous issues from doctors , nurses, surgeons. Will do that when there is no other choice.

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Replies to "Thank you for your response. I used ISO source (rehab), Vital (hospital)and now Jevity 1.5 at..."

Are you saying the balloon on your g-tube broke? If so, and if you don't want to go through our doctor, etc. (sounds like that is so) you can order them online. Amazon has them. Just be sure you order the same size you currently have.