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I have recently been diagnosed with my third neuroendocrine tumor

Neuroendocrine Tumors (NETs) | Last Active: Feb 12, 2017 | Replies (38)
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@gaylejean

I am interested in trading experiences and information with anyone who has neuroendocrine carcinoid tumors.

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Replies to "I am interested in trading experiences and information with anyone who has neuroendocrine carcinoid tumors."
lorettanebraska | @lorettanebraska | May 11, 2016

Hi, I was recently diagnosed with neoendocrine tumors and autoimmune gastritis. So far I was told to do nothing at present since the tumor was nonmiotic. What did they do for you? I would prefer the tumors be removed. Loretta<br><br>

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Colleen Young, Connect Director | @colleenyoung | May 11, 2016

Welcome @gaylejean and @lorettanebraska.
I moved your messages to this thread so you can meet others with neuendocrine tumors. So glad you found us on Connect.

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gaylejean | @gaylejean | May 11, 2016

I don't know if I have autoimmune gastritis. And I don't understand the<br>term nonmitotic - means not comparable - to what? Means you don't have<br>other tumors to compare it to?????<br>Since my diagnosis, I have seen four specialists - all of them recommended<br>the wait and watch approach. It drives you crazy because you read about<br>having surgery early to remove the tumor before it spreads. I was diagnosed<br>in 2002 and asked for surgery in 2008. It was too late to do any good<br>because of the metastasis but it was good I had surgery - saved me from<br>dying from "blue bowel".<br><br>

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