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MAC nodules

MAC & Bronchiectasis | Last Active: Jul 27, 2023 | Replies (54)

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@irene5

Interesting! I was diagnosed with that last August at UMASS. My lung collapsed and then I had a chest hemorrhage. It was a minimally invasive robotic surgery that went terribly wrong. Apparently my lungs had become fragile and quite inflamed which caused the domino effect for me. I was on Vfend but after 6 weeks could no longer tolerate it. Tried it a second time, and it was bad. They are trying to get Cresemba for me, but it is very pricey. Such a dilemma at this point. Hope you are doing better. Irene

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Replies to "Interesting! I was diagnosed with that last August at UMASS. My lung collapsed and then I..."

I have opted out of vats at NJH. I went back to my UCHealth ID for now. I am not doing too bad on voriconazole other than some skin side effects. I'm thinking Mayo next.