I was in great shape 4 months ago: elliptical, Nordic Track, swimming, golf, weightlifting. 3 months after starting Tymlos, I have painful ankles, shins, back and knees. I can walk 7000 steps with pain afterwords and can do nothing else. I recently returned from a trip and required a wheelchair to go from the plane to the airport exit.

I have seen 8 physicians and no one can figure it out. I do have new left calf atrophy so there may be a true ruptured disk component but my symptoms are way more extensive. I decided last night that I need a month of Tymlos to see how it is affecting me. I don’t want to reduce the dosage because I need to see what Tymlos is really doing so stopping makes more sense.

I have to ask my MD if I need to replace it with something else. The pain has destroyed the quality of my life and the (current) treatment is worse than the disease. My next step is to go to a major neuromuscular center (like Mayo Clinic) if I can’t get resolution.

GSW Pitt