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I have recently been diagnosed with my third neuroendocrine tumor

Neuroendocrine Tumors (NETs) | Last Active: Feb 13 1:37pm | Replies (45)
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@hopeful33250

By the way, I just realized that I failed to mention that all three of these tumors have been located in the duodenal bulb. The first was .9 cm, in 2003; the second was .3 cm in 2005 and this one is 1 cm.

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Replies to "By the way, I just realized that I failed to mention that all three of these..."
gulzar | @gulzar | Oct 31, 2016

what is Ki67 percentage of it if they had the biopsy.

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hunts1014 | @hunts1014 | Feb 1 5:23pm

I read your story and pray you are doing well. How are you? How was yours removed?

My husband was diagnosed with this in Oct. 2024 and was removed during a routine Endoscopy. We have seen a local gastroenterologist, oncologist and both were not familiar with this tumor in this location therefore I went to MD Anderson in Houston TX. Unfortunately, I’m told there is nothing to do to prevent recurrence other than monitoring with an Endoscopy every 6 months for 3 years and then annually after that for rest of my life. Mine was a grade 1 well differentiated 7 mm tumor.
How were you monitoring your cancer when more tumors were found? Any insight you can share would be very appreciated?

How do you rate the care at Mayo Clinic as we were not thrilled with MD Anderson as we felt like a number there since my husband didn’t have an active tumor. We were told similarly to you in that they considered him cured but we are concerned about recurrence as we have read a lot about people having additional nets in their duodenum bulb after complete resection.

Thanks,
Kim

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