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What do I need to know about NETS?

Neuroendocrine Tumors (NETs) | Last Active: Sep 11, 2023 | Replies (43)
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@vmchow

I wish I'd seen this video a year ago after being diagnosed with a PNET. I kept looking for exactly this kind of plain talking about this rare disease. I just had a distal pancreatomy to remove a 1.8 NET. Saved the spleen. Everything went well so far.... Its been 5 weeks. Thank you for posting this video🙏

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Teresa, Volunteer Mentor | @hopeful33250 | Jul 26, 2023

So glad that you found this video helpful. If you go to YouTube you will find many videos from the Carcinoid Cancer Foundation (CCF) with lots of educational videos. You can sign up with CCF to receive a weekly newsletter that will inform you of upcoming FaceBook Live discussions where you can submit questions.

Here is the YouTube channel:
https://www.youtube.com/results?search_query=carcinoid+cancer+foundation
I am also glad to hear that you are recovering well from your surgery. Do you have any suggestions for others who are facing similar surgeries?

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