← Return to Small Bowel/Ileocecal Valve Resection: 10 months post-op and no relief

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@jlstjohn

I had about 5 feet of my ileum removed along with the ileocecal valve and part of my cecum due to a cecal volvulus. I was put on Immodium for many months post-op to control the diarrhea, but perhaps this is not advisable for you due to your narrow intestines. I was recommended a book called "A Patient's Guide to Managing a Short Bowel" by Carol Rees Parrish. It is free to patients and was a great guide. Prior to my volvulus/emergency surgery, I struggled with constipation issues, so my picutre is quite different from yours, but since my journey began I have been treated for SIBO four times. Three times I was put on Xifaxin, this last time I tried an herbal antibiotic combination. SIBO symptoms can be pretty intense, so along with treatment you can try a low FODMAP diet to help things calm down. One of the most helpful things I did was to connect with a RD who specialized in GI issues. Mine is out in CA (I live in WI) but we conducted our sessions via Zoom. I was able to expand my diet and understand what foods would work best for my unique set of challenges. I pray that your new GI doctor is helpful and for relief; I know that feeling a hopelessness!

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Replies to "I had about 5 feet of my ileum removed along with the ileocecal valve and part..."

Thanks for your comment! Have you been able to manage your SIBO and find some relief? I’m glad you were able to find someone that was able to help you.