You’re welcome. I hope you’re able to get some relief and answers soon.

I came across this article as well if it might help: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5911650/

Other than a trial of prednisone, it mentions an ultrasound being a possible diagnostic tool as well. (But in my area it can also take months to get an ultrasound…)

That’s a good idea to discuss a trial of prednisone; I hope the ANP will be receptive to it. Given what you’ve said about it being so difficult to get through the day…and if the pain is severe, it seems worth a try. If it is PMR, the pain and fatigue can become severe. And it occurs so often with GCA, which can cause a serious risk of blindness and a risk of stroke. That’s what we were most afraid of with my dad when we were struggling to get him treatment. He did have a stroke two weeks after receiving the official diagnosis, but we’ll never know if it was related to the PMR/GCA or not because by then he’d already started a lower dose of prednisone from his PCP.

I’m not trying to be so doomsday >_