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@cakodra

Thank you, John. I neglected to mention in my original post that my doctor has made a referral for a rheumatologist, but she warned me that it can take up to a year to get an appointment with one. I’ve not heard anything yet. The neurologist who I will see in March of next year did a nerve conduction study on me in June, which showed no significant abnormalities. He agreed to see me as a new patient if my symptoms didn’t go away or if anything new occurred, but the appointment is still a long way off.

I see my regular PCP (well, actually an ANP—my doctor retired a couple of years ago, and I’ve only seen the ANP since) in September and will ask about a steroid trial then or sooner. I have bloodwork due in August and am hoping it might show something more definitive than last time.

You’ve been most helpful. Thank you for the links and good advice. —Cathy

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Replies to "Thank you, John. I neglected to mention in my original post that my doctor has made..."

My pcp told me to call the referral doc if I don't hear anything from their office. That's exactly what happened, didn't hear from them. Be proactive.