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Has anyone been prescribed EB-N5?

Neuropathy | Last Active: Jun 9 9:30am | Replies (87)

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@islandelf

I am so discouraged. Looks like I have been on EB-N5 for two weeks now. I did not expect a cure immediately because they told me it could take 3 - 6 months. However, I haven't seen any new bruising, but Friday I began getting shock like nerve pain in my left foot big toe, I believe that's my hallux. It's like these pills possibly took away the numbness and replaced it with feeling and pain. Also, even though I took the pills with food I developed stomach aches. I am getting epidural shots in my back on Wednesday so I thought I should stop the pills because alpha lipoic acid can reduce blood clotting. I stopped taking the pill on Saturday night and the nerve pain in my toe has reduced somewhat today, but not completely. I see my general practioner tomorrow and will see what he says. He is always pushing stem cell and/or infusions so I'm sure he won't be 100% for these pills. By the way my Vitamin B12 in on 3/31 was 1500 and my D-25 hydroxy was 131.0. Both very high. When I stopped taking the B 12 and D3/K2 my B 12 went down to 304 and my D25 went down to 56. This was on 7/3 so maybe I should go back on them. So confusing. After reading some of the other posts on neuropathy I feel lucky that I'm not as bad as so many others. It just that everything I try seems to make my neuropathy worse.

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Replies to "I am so discouraged. Looks like I have been on EB-N5 for two weeks now. I..."

Hello, islandelf (@islandelf)

I've only been on EB-N5 a little longer than you. Day 22 for me today. When my neuro doc suggested EB-N5, I decided I would give the regimen a fair trial and not jump to conclusions prematurely. Naturally, I'm aware of how I'm feeling day by day; it's impossible not to be. But knowing it's my nature to declare defeat or victory too soon, I've agreed with myself not to do so but instead to wait the full 90 days (the supply I have on hand) or even a full 180 days if, after the 90 days, I'm motivated to continue. In the meantime, I'll see my neuro doc in three weeks, when I'll discuss my vitamins and supplement levels to ensure I'm not over- (or under-) dosing.

Good luck to you! I wish you success in your use of EB-N5.

Ray (@ray666)

Too much b6 can cause the issues you described, are you taking the b6 or did you hold off on the b6? All the other supplements are probably fine I just wouldn't take the b6.