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@rjw4usmc

Hi Brice,
Thanks for sharing your story. Having been catheterized many times I wonder if that could also be the source of my urethra pain. It has not quite been a month since my last Urethroplasty with a TUIP. (Transurethral Incision of the Prostate) so I will give it some more time to heal. My PVR has been good but my urgency to urinate not so much. Incontinence seems to get worse with every invasive procedure. My doctor says the urgency can be handled with 20 botox shots into the bladder but I am hesitant to do more invasive procedures. I have gone into Urinary retention twice and it is not something you want to go through. Interesting they are using clobetosal in your urethra. I use it to treat psoriasis. Very strong steroid but I have been told to use it sparingly as it can thin the skin over time. Granted this is for external use but I wonder about long term use in the urethra. Have you noticed any pain relief with the clobetosal? BTW do they give you anything for pain for the cystoscopy? I have had quite a few but only lidocaine is used. Sometimes they are not bad at all but sometimes very uncomfortable. In my case I think it might be when they have to navigate the instrument past my strictures. Best to you Brice and hope your urethra heals up nicely and you are able to move on post RP.
Bob

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Replies to "Hi Brice, Thanks for sharing your story. Having been catheterized many times I wonder if that..."

Hey Bob,
I appreciate your input too. I have been given lidocaine on both cystoscopies. One was horrible and painful the other was bad but not as bad. I have a lot of irritation and soreness there all the time so they tell me most patients tolerate this scope easily. I don’t fit that profile. It could be the scope operator factor. The clobetasol treatments are helping a little I think but I was expecting or hoping by now I would be saying “wow big difference “ but no not there yet. I’m half way through 10 weeks of treatments titrations down to the last 4 weeks once every 4 days. Currently I’m every 3 days. I started treatments every day for 1 week , every other day for 2 weeks. Mayo urologist suspected Lichen Sclerosus but no biopsy to prove it means treatments with clobetasol is diagnostic. Also my urologist at home here thinks probably not LS, however says finish 10 week course because the steroid should quiet inflamation anyway.
I have no prostate, had prostatectomy and I’ve read that scope navigation through the prostatic urethra can be difficult.
Again wishing you the best and prayers for a positive outcome.
Brice