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@emo

Echoing @johnbishop and @tsc, you definitely CAN have PMR or another inflammatory arthritis without elevated inflammatory markers.

It’s less common but it’s not so uncommon that it’s unheard of. Specifically, I have seronegative spondyloarthropathy (I follow this forum because my dad has PMR) which causes inflammation of the entheses (the place where the joints insert into the bone). This causes really bad burning and aching joint pain in large joints such as the shoulders, knees, and heels, though it’s most often in the lower body. My inflammatory markers have never, ever been elevated. It was to the point that Mayo Clinic rheumatologists misdiagnosed me. The pain persisted and eventually I decided with my rheumatologist at home to do a trial of a TNF blocker for this type of arthritis and it helped.

It can be difficult to differentiate between PMR and other inflammatory conditions though, and prednisone is nonspecific, meaning it could quash any type of inflammation and you might not be able to be sure it’s PMR. For that reason, in my experience it’s usually a rheumatologist you’d want to see for an “atypical presentation” of PMR.

My dad has PMR with elevated markers, but his pain pattern was “atypical.” A rheumatologist diagnosed him because we weren’t making any headway with his PCP. Honestly, I got fed up trying to convince him to even consider PMR that we just jumped over him and found a rheumatologist. But I know that’s not an option for everyone, plus there can be a long wait. We got lucky and I found an opening.

I see the others provided you with some resources you might be able to share with your doctor; maybe that would help.

What kind of doctor are you working with, and if it’s not a rheumatologist, do you have an option to try to find one?

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Replies to "Echoing @johnbishop and @tsc, you definitely CAN have PMR or another inflammatory arthritis without elevated inflammatory..."

I’m working with my internal medicine ANP for the most part. She has put in a referral for a rheumatologist, but it can take up to or more than a year in this area to get an appointment. And I have to have a referral. I still haven’t heard anything regarding that. I do plan to ask my ANP if we can try a trial period of prednisone to see if my symptoms improve. I also have bloodwork coming up in August, and that might help if anything has changed. My blood pressure readings have dropped significantly since this started—80s/50s is now my normal range, and sometimes lower. Considering that, I should be able to tolerate the steroids’ hypertensive effects.

Thank you—your message was very helpful.