This sounds terrible and scary. (And PS I HATE it when providers/nurses turn off the “reply” feature on messages. I don’t know if they know this, but it feels like a door being slammed in the face.)

Honestly, if it was me because I’ve had some really bad experiences with healthcare providers, I wouldn’t continue corresponding with the original anesthesiologists. I just don’t feel like I have space in my brain or heart to deal with that kind of attitude anymore especially if it relates to my health.

It seems they either don’t know what happened or at the very least they don’t seem very invested in helping figured it out, let alone connect you to someone who could help.

Is there someone else you feel comfortable reaching out to such as your PCP, to help come up with a plan and/or reach out to the people who treated you before?

You could still have small fiber neuropathy even if your EMG is normal—small fiber nerve dysfunction wouldn’t show up on an EMG. And like someone else has alluded to, it’s possible you might have developed some kind of pain syndrome…any kind of very physically or psychologically stressful or traumatic experience, like it sounds like what happened to you can make someone more likely to developed a pain syndrome (CRPS, central sensitivity syndrome, etc.)

The anesthesiologists were right about referring you to a neuromuscular neurologist; that’s the type of person who treats neuropathy. But it may take eons (months where I live) to get an appointment.

Recently, I saw a hand specialist, and I wonder if that would be more direct and specific, even though they’re orthopedists?