Hi, @cakodra, sometimes the symptoms of PMR are there but the inflammation markers aren't elevated. If this is the case, doctors are advised to exclude possible infection, malignancy, connective tissue or hypothyroidism, and if ruled out, consider a diagnostic trial of corticosteroids, 15 - 20 mg of prednisone. If there is a "dramatic clinical response, it's most likely PMR. If not, they must consider the alternate disorders/diseases. (Cecil and Goldman's Textbook of Medicine, Chapter on PMR and GCA).
I had full blown PMR for about four months, my sed rate was only slightly elevated, and my doc at the time did not put it together. Fast forward about eight months later, my sed rate was 120 and diagnosis of GCA confirmed by temporal artery biopsy. I took Prednisone for about a year and a half and have been off it for about 10 months. I told the Rheumatologist that there is nothing like the pain of PMR.
It may be worth it to ask your doctor to do a diagnostic trial of prednisone, or find someone who will. Good luck and I wish you the best!