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Anyone dealing with Prostatic Strictures after Radiation therapy?

Prostate Cancer | Last Active: Nov 7, 2023 | Replies (21)
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@bfg1

Hi, I also had RP, no radiation. It will be 2 years Oct. 1 2023
I started experiencing the burning urethral pain 1 month after surgery. It was mis diagnosed for a year.
Long story shorter more recently and 2 cystoscopies 7 months apart, I have injury to my urethra possibly due to the catheter at surgery. My treatment regimen for now is 10 weeks of intermittent intra urethral clobetasol which is a steroid ointment. The doctors are hoping it will relieve the inflamation and pain.
If this doesn’t work there are other options to explore for the scarring also known as strictures. Urethroplasty being the last effort for serious strictures that prevent one from emptying the bladder.
I don’t know yet if I’m going there because I can still pee and my PVR testing is still quite good. PVR is post void residual, how much is left in the bladder after relieving yourself. Also I am scheduled in October 2023 for a urethragram which my urologist says will give him an even more detailed look at the urethra. I’m not sure if this helps you but your description of the pain sounds like what I have. I also have healed nicely from my surgery in every other way. I wish for you the best possible outcome,
Brice

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Replies to "Hi, I also had RP, no radiation. It will be 2 years Oct. 1 2023 I..."
rjw4usmc | @rjw4usmc | Jul 23, 2023

Hi Brice,
Thanks for sharing your story. Having been catheterized many times I wonder if that could also be the source of my urethra pain. It has not quite been a month since my last Urethroplasty with a TUIP. (Transurethral Incision of the Prostate) so I will give it some more time to heal. My PVR has been good but my urgency to urinate not so much. Incontinence seems to get worse with every invasive procedure. My doctor says the urgency can be handled with 20 botox shots into the bladder but I am hesitant to do more invasive procedures. I have gone into Urinary retention twice and it is not something you want to go through. Interesting they are using clobetosal in your urethra. I use it to treat psoriasis. Very strong steroid but I have been told to use it sparingly as it can thin the skin over time. Granted this is for external use but I wonder about long term use in the urethra. Have you noticed any pain relief with the clobetosal? BTW do they give you anything for pain for the cystoscopy? I have had quite a few but only lidocaine is used. Sometimes they are not bad at all but sometimes very uncomfortable. In my case I think it might be when they have to navigate the instrument past my strictures. Best to you Brice and hope your urethra heals up nicely and you are able to move on post RP.
Bob

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jmccune65 | @jmccune65 | Nov 6, 2023

Hi Brice, I was wondering how you are doing? I believe I was injured by the catheter also. I am 2 years post surgery and I continue to have penis pain. My catheter popped out on its own 4 days after surgery. I'm not sure I can undergo anything intra urethral. Any insight/advice you can provide would be appreciated.

Thanks and I hope you are well.

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