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Replies to "The big three are Rifampin, Ethambutol, and Clarithromycin or Azithromycin. ( either). Terri was on alternating..."
MAC & Bronchiectasis | Last Active: Jul 27, 2023 | Replies (54)
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The big three are Rifampin, Ethambutol, and Clarithromycin or Azithromycin. ( either). Terri was on alternating meds 2weeks per month of doxycycline and then ciprofloxacin. One month the Doxy and the next Cipro. My ID doctor put me on those as I had issues with the Big 3. I think I took those for about a year. A susceptibility test was done and my MAC wasn’t susceptible to the Cipro. It was then that I started on the Arikayce and am now MAC free. Unfortunately I now am fighting invasive aspergillosis fumagatos with pneumonia which is a whole other ball of wax - or mold really !! C’est la guerre. Hope that answers your question. Irene5
Replies to "The big three are Rifampin, Ethambutol, and Clarithromycin or Azithromycin. ( either). Terri was on alternating..."
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Quite a few of us now have aspergillus. I was treated for MAC and have been clear for close to 2 years only to have this fungal infection. I've been on voriconazole for 8 months, while the side effects are not terrible, my skin and hair are thinning , my toes are numb, and I am sensitive to the sun for the first time. I did better reaction wise with the big 3.