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Anyone have swelling with liver metastases?
Neuroendocrine Tumors (NETs) | Last Active: 3 days ago | Replies (25)Comment receiving replies
Yes I am scheduled on August 2nd. Have to have right side valves replaced. Hopefully I will get some strength back.
I am getting Lanreotide injections once a month and it seems to be helping. The surgery is scheduled at UNMC (University of Nebraska Medical Center).and I was able to pull a few strings and get the best cardio thoracic surgeon at the facility.
Replies to "Yes I am scheduled on August 2nd. Have to have right side valves replaced. Hopefully I..."
Hello @mmckeone
I hope that your heart surgery went well and that you are on the road to recovery. When it's convenient for you, will you post an update and let me know how you are doing?
Just found this. I can’t remember if I posted anything about this or not, bad memory. My husband was diagnosed 4 years ago and has been on Lanreotide inj and Everolimas for the last 2 years. He has about 50 tumors in his liver and some scattered in other organs. only 2 of the tumors were growing faster and the meds slowed them. He had to have valve replacement this past January. We went on vacation and he started the same gross swelling in thighs, abdomen and even his hands. He went to ER when we got back and it took 160mg of IV lasix twice a day for 2 weeks to get rid of it. Scans showed that now it’s the pulmonary valve that’s leaking and he’s upset that they didn’t replace that one as well when they did the mitral valve. Anyone have a similar experience?
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Thinking of you.