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Anyone have Scleroderma?

Autoimmune Diseases | Last Active: Dec 15, 2023 | Replies (37)

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@windyshores

The pursuit of labels can be frustrating. I have similar symptoms. A long time ago I was diagnosed with lupus but doubted it. I have high anti-centromere antibodies but no Raynaud's or calcinosis. My kidney function went down. My fingers are curling in but local rheum. says skin is not tight. I know I don't meet the criteria.

Did you see a Scleroderma Program? I think people like us will be monitored in case symptoms do appear that might harm organs. I have been told many rheumatologists don't know much about scleroderma so I am waiting for my appt. with a Program.

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Replies to "The pursuit of labels can be frustrating. I have similar symptoms. A long time ago I..."

Hi, I haven't seen a Scleroderma Program yet. May I ask where this program is and how to get appointment to see them? I will have a follow up appointment with the rheumatologist next week. I hope the SCl70 antibody results is false positive. I've read that if it's three times higher than the threshold value for a positive result, the likelihood of false positive is slim. My value is right around three times higher.