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First Lanreotide Injection: Any tips about diet and side effects?
Neuroendocrine Tumors (NETs) | Last Active: Aug 16 7:34am | Replies (73)Comment receiving replies
Hello @nana120
I would like to join the other members of the NET support group in welcoming you to Mayo Connect. I'm glad that you found this forum and are learning from the experience of others. I would encourage you to do what others and I have done and that is to ask your doctor for a referral to a registered dietitian at your local hospital. I have consulted with a registered dietitian several times and have found them most helpful.
I see that your NETs were found incidentally. I'm wondering if you have had any other treatments such as surgery, biopsies, etc.? As many of us were symptom free prior to our diagnosis, I'm wondering if you having any symptoms prior to the diagnosis?
I look forward to hearing from you!
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I did have a biopsy in Dec 2022. It was very painful since the IR said he could not sedate me with twilight sedation as originally planned due to the tumor being up under the dome of my liver too close to my diaphragm and my breathing would be too shallow if I was totally sedated. If I had had any symptoms of my NETS I did not know what they were and did not recognize them. I have not mentioned to this group that I also have CLL and have had it since 1996. My local oncologist told me I was his first patient with both. Thank goodness I have a NETs specialist in Dallas who directs that portion of my treatment.