Bon,
I am going to recommend something I TRULY wish I had done - ask to be referred to a counselor with whom you can share your fears. I was a mess for the first 6-9 months of my treatment - didn't feel like I was getting the best care, scared, very sick (from MAC and Pseudomonas at the same time.) I tried to be strong for my family, my daughter was in a difficult pregnancy... I just became a couch potato unless my 2yo grandson was with me.
By nature and upbringing, I was taught to be strong for everyone else, whether I was or not. I should have stopped saying "I'm okay" to my PCP and asked for help. Talking things out, getting some coping skills, maybe even temporary meds, would have been the best thing.
As for the rest of your questions, the antibiotics aren't pleasant, but not all of them cause reactions in every person. Your doc has your back!
I recommend two things for you to do now:
1) Ask Dr Swenson to have his nurse or assistant available to coach you through the first few weeks. I needed help from my doc's nurse to figure out when to take (bedtime worked for me but everyone is different), how to take (together and with a little starchy food worked best for me) and that certain foods didn't taste good to me while I was on the meds.
2) Ask your primary to refer you to someone you can talk to about your fears.
Can you try these?
Sue
Thank u sue for your honesty. And suggestions ❤️