@summerof42. I am soooo sorry you have gone through so many attempts with those results. Myself and Im sure most others here have similar stories and just want to further suggest due to my experiences running medical practices and dealing with beyond frustrating arduous processes for two adult disabled children. Since Mayo Clinic did sound hopeful, most healthcare systems have patient advocates who work with social workers to help make special arrangements that your situation needs. I have found being very respectful but forthright from the first call to patient services informing them in very few words your severe health and challenges with no family/transportation/caregiver/travel companion to get there, that allows them to reach out to sources outside the normal box and at first sign of push back kindly ask what dept helps the disabled there. It will probably take several follow up calls due to the number of us now challenging abilities of healthcare systems so dont give up and pace yourself as know just typing here can really use up days energy/bring on symptoms next couple of days🙃 There are also private social workers that can be hired however I know most of us going through this have lost or limited income to afford that☹️ We will find a way to help you!🌈