← Return to Anyone else have CHEK2 gene mutation? And have had multiple cancers?

Discussion
Comment receiving replies
@mebanbury

I would not let them take your ovaries. They do most of the hormones. I had a partial hysterectomy in 2011 due to fibroids. They took the uterus but left the ovaries to keep me from going into early menopause. I'm 53 now and my hormone levels are still normal. I make the Dr check every so often to make sure. I have an Endocrinologist for my thyroid meds but, I see an Oncologist for the Chek2 stuff. He makes sure that I'm getting the correct check ups and avoiding anything that other Specialist Dr are doing that might be a problem. (Multiple radiology, meds like Ozempic, ect) He and the Oncology Surgeon do acknowledge they don't have much infomation or knowledge about Chek2 right now. Right now they are both pushing a double mastectomy for me because of my history. I did say No and they are working with me on developing other safety options. However, I just had a biopsy on a breast lump yesterday. They found it in my breast scan this month. It was not there in Jan's Mammogram. I have had 2 prior biopsies that were benign. One was a surgical biopsy and it caused horrible pain. They think I'm going to have Post Mastectomy Syndrome which is why I said no to the double Mastectomy. You do have the right to say NO to anything the Dr recommends. It is your choice what is done to your body. Make the decision what is best for you and your quality of life. The Dr doesnt know that part when they suggest stuff. If you want to keep your ovaries and let them take the uterus that is what they have to do. Even no hysterectomy at all (although I love no more period). An ultrasound can always check those organs safely as often as needed. Good Luck

Jump to this post


Replies to "I would not let them take your ovaries. They do most of the hormones. I had..."

Thank you for sharing your journey. I do appreciate it. I'm still on the fence on what to do & I see my Dr next week. Ugh ... I've tried educating myself on the results of full hysterectomy & the results from it. Scares me for sure cause I don't want to go into full blown menopause just yet. I'm only 50. My mom still had periods at 60 when she passed away & my sister still had hers when she passed away at age 52.
Yes I look forward to having no periods for sure cause they are extremely painful & heavy. But then again this gene mutation thrives on estrogen & the ovaries produce it. So I'm back to square one lol. Not sure what to do. Dr wants to remove everything due higher risk of uterine cancer and ovarian cancer as well. But I like the idea of having her check my ovaries every so often to see if they are ok instead of taking them out right now.
Thank you for your advice. Good luck to you as well.