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Anyone have Scleroderma?

Autoimmune Diseases | Last Active: Dec 15, 2023 | Replies (37)

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@kle

Hello, I have been having diffuse pain, tingling and numbness, muscle and generalized fatique throughout my body. I also have bloat, constipation and frequent urination when pain is severe. My lung function, heart and skin appear relatively normal. My ANA and SCL70 test came back positive, although their levels were not as high as mentioned by some of the members in this posting. My neurologist said that I may also have small fiber neuropathy due to reduce nerve number on skin biopsy. I was wondering if scleroderma can present with the symptoms I have-- generalized pain/neuropathy and fatigue and GI and urinary issues. The rheumatologist said that I don't have a classic sign of scleroderma and from reading info on this disease on the internet I learned that that the symptom can be variable. Any insight to this will be greatly appreciated.

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Replies to "Hello, I have been having diffuse pain, tingling and numbness, muscle and generalized fatique throughout my..."

The pursuit of labels can be frustrating. I have similar symptoms. A long time ago I was diagnosed with lupus but doubted it. I have high anti-centromere antibodies but no Raynaud's or calcinosis. My kidney function went down. My fingers are curling in but local rheum. says skin is not tight. I know I don't meet the criteria.

Did you see a Scleroderma Program? I think people like us will be monitored in case symptoms do appear that might harm organs. I have been told many rheumatologists don't know much about scleroderma so I am waiting for my appt. with a Program.