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My doctor put me on the same meds as Terri as the Big 3 made me sick. They are a good fit until they are not. In all honesty I wish I had that cocktail for exacerbations. Susceptibility is the word of the day - if your MAC is not susceptible to either of them, that protocol won’t help you. Arikayce cured my MAC without my feeling side effects. Terri is an excellent resource.
Replies to "My doctor put me on the same meds as Terri as the Big 3 made me..."
Hi Irene5 and other Members!
Thanks for your post re Arikayce curing your MAC! I was so encouraged and certainly hope you never have MAC again.
Just wondering when you started Arikayce and how long after were you negative?
I started Arikayce on 7/10/23 and so far with little to no side effects just the voice changes and some extra coughing! I was told by the special Arikayce Pharmacist these side effects could remain for the duration you are on the med. I am also continuing the Big 3 which I have been on for more than 10 months.
Thank you in advance for responding and should there be any other members of this wonderful group who are on Arikayce or have been cured, I would appreciate a response when you can.....
Thanks,
Flo @frankie160
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The tree cocktail are Ripampin Azithromycin and Ripanbutin. My spelling is not good. I took all of those. Manage the side effect. I thank the good Lord for helping to get through.