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Had Shingles shot and now have PMR

Polymyalgia Rheumatica (PMR) | Last Active: Jan 17 3:40am | Replies (78)

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@barbaraphyllis

I posted my PMR diagnosis following the shingles vaccine and was just notified that there was a response today. It appears you were directing your question to a post in 2021, not mine. I would suggest you ask your questions anyway. If I can’t help, perhaps others on this wonderful forum will give you their input.

My rheumatologist agreed my PMR was triggered by the shingles vaccine. He hoped I would go into remission sooner because of this but that does not appear to be the case. I’m approaching six months wrestling with this debilitating, life altering disease. Already I’m experiencing steroid induced hyperglycemia, weight gain, extreme fatigue and brain fog while my PMR symptoms and inflammatory markers are better.

It’s been 6 months since my first shingles vaccine. My doctor recently told me I should get my second dose and a COVID booster now. Originally he said not to get the second shingles vaccine. I don’t know what to do. It’s a damned if you do, damned if you don’t situation. Both shingles and shingles vaccine trigger PMR. Also, both COVID vaccinations and COVID are linked to PMR. So it’s a pick your poison decision. I’m trying to think positive telling myself I’m in the process of healing.

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Replies to "I posted my PMR diagnosis following the shingles vaccine and was just notified that there was..."

tough decision, if pmr is triggered by the vax and another vax is going to activate an immune system already going awry.... On the other hand, if you already have pmr perhaps another vax won't make much difference? Don't know. My doc said to not get boosters at the present time out of perhaps excess of caution. I think there is presently a lot of uncertainty surrounding the workings of the immune system in particular and vaccines in general.