I had my first ACDF in 2010, laminectomy in 2010, and 2nd ACDF in 2013. I was never pain free or normal since then. However, I was never told about myelomalacia. My condition was declining and within the past 4 yrs, my quality of life is now very low. I have been reporting my unusual and new symptoms continually during this time. Multiple MRIS, EMGS, neurologist, neurosurgeon, orthos, pain clinic...nobody told me about this. Even sent me to a urologist without even considering a spine issue. I KNEW all of these problems were from my neck and I was just dismissed, told to lose weight and live with it. The most recent MRI from June shows chronic myelomalacia. ALL of the symptoms that I have been begging for help with. Now, my condition is so bad that I can't function on my own. I read if treated early, it can be managed and possibly slow down progression. I am livid and frightened. Tried to be seen at Mayo but they wouldn't take me or even look at my reports/scans. Where do I go now? Is this malpractice on doctors or radiologists for a decade??? I am only 54 and living like a 94 yr old.