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How many have had the Big 3 cure, then relapsed?

MAC & Bronchiectasis | Last Active: Jul 22, 2023 | Replies (19)
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@sue22

Hi Tina
Very sorry that you are having more coughing. Are you monitored by a local doctor or NJH during this period? How often do you have sputum cultures . I hope to finish treatment soon for MAC and wondered what the protocol for follow up may be. Thank you if you want to share.
Susan

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Replies to "Hi Tina Very sorry that you are having more coughing. Are you monitored by a local..."
Tina Sims | @tinaesims | Jul 21, 2023

I've known for a year or so that my MAC came back. I went to NJH in April and they confirmed but said my CT scan had improved. I am now going to my local pulmonologist that NJ said was excellent. He diagnosed me with everything but had been pressuring me to go back on the meds. I wanted NJ opinion. I was supposed to go back next month but have cancelled. They also diagnosed with me CF so I'm off to a CF clinic one of these days. I'm really just overwhelmed. My sputum cultures breeding as I type. My local doctor insists on frequent cultures.

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Arlo | @equanimous | Jul 22, 2023

Hi Tina,
I cought a lot also. And, I know this is a bandaid but I find a cup of lemon/ginger tea with a big dollop of manuka honey really helps. Or, at night, before bed, I may have a 1/2 teaspoon straight and chase it with a few sips of water.

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