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trying a new combo drug therapy

Neuropathy | Last Active: Jul 23, 2023 | Replies (16)

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@pfbacon

I am taking one Horizant 600 at night. I order it from St. Louis with an rx from my pain doctor. It's helping. Plus, I take Gabapentin 600 morning and afternoon. I was taking 800 mg Gabapentin 3x a day before we added Horizant. I am gradually cutting the gabapentin as my body gets used to the Horizant. I still feel burning in my toes, feet, legs, almost constantly. I can take a Tramadol 50 as needed but it doesn't completely kill the pain either.

I was diagnosed in 2018 with Axonal Sensory Neuropathy (it's much worse than PN - when unmedicated, it feels like the bonfire, electrocution, wasps, and swords all at once and all worsening each moment). It also exaggerates pain from scratches, cuts, surgery, etc. We started with the lowest dose of Gabapentin and have increased it as the condition worsens. There isn't any cure for what I have, just mitigating the pain.

Sometimes I ask my brain to command my nervous system to relax. That works - it only lasts while I'm thinking about it but it does give me a short break.

Thank you all for your input - we're all in the same boat - looking for relief from constant pain. Peggy

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Replies to "I am taking one Horizant 600 at night. I order it from St. Louis with an..."

I recently discovered that making a deliberate effort to mentally relax when driving resulted in a dramatic improvement in the discomfort I experience sporadically in my accelerator foot when driving long distances. The discomfort seems more due to the motor rather than the sensory component of my neuropathy. It's as though my muscles aren't responding properly to signals from my brain. I was amazed and relieved by the improvement from this simple mental trick.