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Small Fiber Neuropathy and Epstein-Barr Virus

Neuropathy | Last Active: Nov 10 8:34pm | Replies (26)

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@sjg67

I experience peripheral neuropathy that I believe is caused by one or more herpes viruses (most likely HSV2 or VZ). I was hospitalized with viral meningitis at age 18 (almost 40 years ago) and that's where my problems began. Over my lifetime I've had recurrences of severe symptoms over a lifetime (headache, malaise, fatigue bad enough that I need to take time off of work), usually once or twice a year. Approximately 20 years ago, the peripheral neuropathy started with a burning sensation in my feet. It has become worse in recent years (due to age?) where it becomes "systemic" and my limbs become weak and I can feel it in my head. I am having trouble getting a diagnosis that I could use if I become unable to work (I am currently experiencing the longest flare up I've ever had - almost two months). I believe I need to see a neurologist who specializes in viral-based neuropathy. I take a prophylactic antiviral (Valtrex) and I believe things would be much worse if that were not the case. Any thoughts or suggestions would be appreciated.

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Replies to "I experience peripheral neuropathy that I believe is caused by one or more herpes viruses (most..."

Hello @sjg67, Welcome to Connect. I'm not sure how helpful these references are but they are on the topic of viral based neuropathies.

--- Peripheral Neuropathy Evaluations of Patients With Prolonged Long COVID: https://nn.neurology.org/content/9/3/e1146
--- Peripheral Nervous System Manifestations of Infectious Diseases: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4212417/

Have you thought about seeking help or treatment at a teaching hospital or major health facility?

Please let us know if and when you see a viral-based expert neurologist, and the outcome. Thanks.