← Return to Newly diagnosed with thyroid cancer and have 2 main concerns

Discussion
Comment receiving replies
@koh

@cocha- I think I had follow up bloodwork about a 4-5 weeks after surgery and then again about 6 weeks later…. I have been having blood work about every 6 weeks due to fluctuations in levels and symptoms.
I was having symptoms of thyroid disease and felt terrible. 4 months after surgery I had to go on Synthroid ( I wanted the brand name to start out to minimize any variables). As soon as I started the medication I felt better than I had, however it has been very difficult to get regulated on it. Very tricky!
From what I read, they often try and keep the thyroid number very low to prevent cancer from spreading, however I just kept feeling worse every time dose was increased. I changed doctors and this one seems to listen to my symptoms and considers changes.
My doctor said that my TSH numbers are in the normal range however this range might not be normal for me, so he looked at old blood work and said we could try and get me to a similar level and see how I feel.
Getting regulated on Synthroid has been tricky but the issues from not taking it were severe…..if you don’t feel well, definitely give yourself time to adjust to it and monitor your symptoms. The smallest increments can make big changes with how you feel, however it takes about 6 weeks for the levels to show in bloodwork.
Good luck!

Jump to this post


Replies to "@cocha- I think I had follow up bloodwork about a 4-5 weeks after surgery and then..."

Thanks @koh. I had my bloodwork done today and the TSH numbers are way out of the normal range. But I have been feeling quite normal. I have asked my endocrinologist if I need to now start on Levothyroxine. Let's see what they say.

@koh - so my endocrinologist had called for a TSH 1 week after the lobectomy and my TSH number was just over 5. (it was usually between 2 and 3 prior to surgery) She asked me to start taking Levothyroxine 50mcg which I took for a couple days without any side effects, and then stopped because the surgeon who I met the following week said I need to wait for my my 6 week bloodwork (to start on Levo), because the body was still adjusting. So come 6th week, I have my TSH levels tested and they are now at 11.5! So my endocrinologist asks me to start on 75mcg. Up until then, I have been feeling pretty normal. But 2 days into taking 75mcg Levothyroxine, I am feeling so sleepy in the mornings.

Is this just the body adjusting, or is this too much (or too less) Levothyroxine? I did not feel like this with 50mcg. And frankly, I was just fine without any thyroid hormone replacement.